We WON the CZI Rare as One Grant!!!
We’re thrilled to announce that we’ve been selected to join the Rare As One (RAO) Network as recipients of the Chan Zuckerberg Initiative (CZI) Grant! Please learn more here.
Children's Book Release
For World Mitochondrial Disease Week, we are thrilled to introduce you to Chondrie, a friendly little mitochondrion with a big job!
Our new children’s book was created to help kids and families understand mitochondrial disease in a gentle, hopeful, and child-friendly way.
And here’s what makes it even more special: every child in this book is a real patient living with an mtARS-related mitochondrial disease. Their stories, shared with love, shine a light on resilience, courage, and the different ways mito affects the body.
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