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Our Story

We are a non-profit organization dedicated to spreading awareness, connecting & providing support to affected families and funding research for the ultra-rare Mitochondrial ARS genes.

What ARE Ars Genes?

Mitochondrial ARS genes are a family of genes called aminoacyl-tRNA synthetases that cause a variety of neurodegenerative disorders in the body. Each gene is an ultra-rare type of Mitochondrial Disease.

upcoming EVENTS

Run4Rare 5k Run & 1k Walk 

Date/Time: May 18, 2024 at 9:30AM
Location: Duke Island Park, Bridgewater, NJ

CureARS Golf Classic 

Date/Time: October 5, 2024 at 9:00AM
Location: Cumberland Country Club, Cumberland, MD



CureARS Non-profit collaborates with Children’s Hospital of Philadelphia on a Drug Repurposing Research Project


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