100% of proceeds will fund High Throughput Drug Screening Research for Daphne and the thousands of others affected by the 19 Mitochondrial Aminoacyl tRNA Synthetase Genes. This research will help slow the progression of her disease so she can live the best life possible while waiting for a cure.

GOLF CLASSIC 2023

2nd Annual CureARS Golf Tournament for
Daphne Magee

Daphne is 8yrs old and the granddaughter of Dr. Howard and Lisa Strauss. She was born with an ultra rare Mitochondrial Disease, Leukoencephalopathy with Thalamus and Brainstem involvement with High Lactate (LTBL). This condition is terminal and has no cure. This tournament is hosted by Daphne's mom, the Strauss' daughter, Desiree Magee who is the

Co-Founder of CureARS.

100% of proceeds will fund the CureARS Research Projects:

High Throughput Drug Screening Research at the Children's Hospital of Philadelphia. This research will help slow the progression of her disease so she can live the best life possible while waiting for a cure.
NORD IAMRARE Natural History/Patient Registry grant recipient at the Children's Hospital of Orange County with CHOC Research Institute and the University of California Irvine