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100% of proceeds will fund High Throughput Drug Screening Research for Daphne and the thousands of others affected by the 19 Mitochondrial Aminoacyl tRNA Synthetase Genes. This research will help slow the progression of her disease so she can live the best life possible while waiting for a cure.

GOLF CLASSIC 2023

2nd Annual CureARS Golf Tournament for
Daphne Magee



 

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Daphne is 8yrs old and the granddaughter of Dr. Howard and Lisa Strauss.  She was born with an ultra rare Mitochondrial Disease, Leukoencephalopathy with Thalamus and Brainstem involvement with High Lactate (LTBL).  This condition is terminal and has no cure.  This tournament is hosted by Daphne's mom, the Strauss' daughter, Desiree Magee who is the

Co-Founder of CureARS.

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100% of proceeds will fund the CureARS Research Projects:

  • High Throughput Drug Screening Research at the Children's Hospital of Philadelphia. This research will help slow the progression of her disease so she can live the best life possible while waiting for a cure.

  • NORD IAMRARE Natural History/Patient Registry grant recipient at the Children's Hospital of Orange County with CHOC Research Institute and the University of California Irvine 

EVENT DETAILs & registration

2nd Annual CureARS Golf Classic 2023
2nd Annual CureARS Golf Classic 2023
When
Oct 07, 8:00 AM EDT
Where
Cumberland Country Club,
10200 Country Club Rd NE, Cumberland, MD 21502, USA

AGENDA

8:00am

Registration/Breakfast

9:00am

Shotgun Start

12:00pm

Sip, See & Socialize

1:00pm

Lunch

(The non-golfers and ARS kids will be hanging out all morning)

Alcoholic and Non-Alcoholic Beverages

are available throughout the event

Four Person Team $600

Single Player $150

Non-Golfer $50

Daphne learns
to golf

PLATINUM SPONSORS

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GOLD SPONSORS

Susan Magee

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HOLE SPONSORS

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Sponsorship opportunities

PRIZES

1st, 2nd, 3rd Place Gross Scores

1st, 2nd, 3rd Place Net Scores

Longest Drive #8

Closest to Pin on #6

Hole-in-one on #18

last years event was a blast

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We gladly accept donations of any amount:

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